My NPR story I did at the begining of summer while participating in the NPR Next Generation Radio Bootcamp at the University of Nevada, Reno.
Jose Gastellum says ever since his son was born, he hasn’t looked like a normal child.
“Like a week, I don’t know, maybe few days he started to get worse. We didn’t know what had happened because his forehead got very ugly, his cheeks had some lumps,” Gastellum said.
Four –year-old Dylan Gastellum has a severe form of eczema. It covers his entire body. His skin is dark red and scaley. It looks like a severe burn.
“Well because you cannot see him like the pretty child that you say, ‘oh my child is so pretty.’ Especially because I can’t even give him kisses on his face,” he said.
Doctors prescribed Dylan steroid creams and pills, according to Arlene Torres, Dylan’s mom. His condition was…
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